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the while, Daniel talked to his dad. Steve was heavily sedated. He was on a ventilator. He couldn’t communicate. Was he aware? While Melody’s computer research gave her conflicting answers to that question, the nurses at Hopkins were of one opinion: at some level, patients in Steve’s state are conscious of what’s happening around them. “So I told the kids that he could hear them.” And she was right. “ I can’t remember much, but I can remember Daniel and Thomas being there,” Steve confirmed.
Melody kept a log of his days, so Steve would be able to follow the course of treatment and progress. Improvement was slow and often interrupted by setbacks, but it came.
Steve was released from Hopkins in September. But a few days later, complications arose and they went back to the hospital — this time in Charlottesville. After a month there, he wanted nothing more than to go home. Melody’s dedication over the months of treatment convinced the doctors she could provide the care he needed. She learned how to draw blood for the tests which must be run every four hours, round the clock, and they returned to Orange to continue outpatient treatment and recovery. Three times a week, they made the drive to Charlottesville, three days a week, a nurse came to their home.
And they wait. Lymphocyte infusion — particularly from an unrelated donor — is so new that doctors lack the statistical data for even a guess. Will this buy another long term remission? “They don’t have a clue. But it was my best chance,” Steve said.
When cancer returned, Steve’s disease and treatment meant he could no longer work and Melody had to leave her job
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