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Although the purposes are much the same, not all groups are organized alike. Some accept parents of children with any birth defect. Some are therapeutic and operate entirely under professional supervision. Other groups meet informally, often at private homes. However, most seek professional assistance at some point, frequently from a social worker.
Many parents say that the difficulty of facing the initial shock seems to be made easier by talking to another parent. One father, whose child is now six, describes his feelings when he sees a new family arrive at the clinic.
“I see them in the hall and want to help. I want to show them things aren’t as bad as they might be. I know what they’re in for and it’s easier if you know what to expect. Now, through the parents association, we have a channel to provide reassurance to these families.”
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