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There is regret, frustration, and a lack of control. And Juanita, a mother of school-age children, voiced another common theme of the autoimmune disease sufferer guilt.
"I’ve been tired and over-stressed with the kids home for the summer," she told the others. "When they’re in school I can lie down and rest but when they're home I feel guilty. They understand when I don't feel well but when I ty to lie down, five minutes later they're fighting, or they want something."
Members congratulate one another on the small triumphs that loom so large in an autoimmune world: visiting a grandchild, taking a long drive in the car. Often, they must prepare for a day of activity by spending the previous and the following days in bed, conserving, prprirms energy_
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