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CFS also causes “cognitive dysfunction.” More often than not, she couldn’t remember what she had just read.
If she had the strength to leave the house, she started attending the monthly meetings of the Northern Virginia Chronic Fatigue Syndrome and Fibromyalgia Support Group. By 1993, she stepped into a leadership role.
In consultation with Jonathan Gilbert, a practitioner of Traditional Chinese Medicine, she set up a new group that focuses not on the latest research and on finding doctors who will treat the disease (or at least admit it exists), but on strategies that have been successful in coping with CFS day to day, month to month. Year to year. This July is the one-year anniversary of EGG - Elly’s Gratitude Group - and it met
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