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Living
With Lupus
To the Editor:
Since this is Lupus Awareness Month, and I am a lupus patient, I would like to share with your readers what it is like to be a lupus patient:
I am always in some degree of pain, but I do not look sick. At times I have very rosy cheeks from the lupus. Most people associate rosy cheeks with good health, but I am not healthy.
When I have to take steriod drugs to reverse potentially lifethreatening symptoms, I gain weight. Most people associate weight gain with feeling good, but I do not feel good.
I almost always have overwhelming fatigue, so I cannot be as active as I would like. Most people associate inactivity with laziness, but I am not lazy.
Lupus attacks many organ systems. Although the symptoms vary from patient to patient, they can include joint pain, muscle aches, skin rash, photosensitivity, hair loss, in
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